His counts:
- WBC: 2.8
- RBC: 3.79
- HGB: 11.4
- ANC: 2.2
While his ANC count is higher than we normally see, the doctors assure us (well me because I am the one that freaks out) it's normal. They monitor his ANC with a goal of keeping it in a certain range - say 700-1500 (that may be off - I don't recall the exact #s) to prevent his body from creating an environment where leukemia cells may pop up again. The chemo that Levi takes is what keeps his ANC in that desired range. They adjust his meds as needed to maintain that range as well...though they haven't adjusted his meds in this phase yet.
Levi is loving school still and the pool. He's looking forward to football season and is a total Panther fan. He ONLY wants to wear his Panther jersey - every. day. all. day. He also has shown an interest in baseball lately as well and is eager to get back on the tennis court when the weather cools off. He loves running still and has enjoyed watching Drew at races lately. Drew is also excited for cooler temps. :)
This past week has been tough for Levi though. Once a month, he has to take a nasty steroid called Dex (short for something). I have a love/hate relationship w/this med. It is critical to his beating cancer but it's messes with Levi mentally. He cannot 'relax' - he's always wanting something but not sure what. For example, at dinner he'll ask for pasta, yogurt, and pizza. We make a couple of those things and he wants only the yogurt. Or he lays around saying he's bored because he's unable to figure out what he wants to do....he wants to watch TV, no he wants to play football, no he wants to go for a walk, no something else....it mentally messes with his head. I hate it. He always seems gloomy. It's not Levi. I dread this one week every month. And we have 2 more years of this. But he's here...so there's why I love that harsh steroid.
And I'll wrap this up with a couple pictures....he's so dang awesome. I am so blessed to be his Mommy. And Ellie's. I owe an Ellie update soon too. Girl is my heart!
Thanks for continuing to follow Levi's story -- please continue to pray for us, especially our Levi.
4 comments:
Hi! I know you don't know me, but long, long ago I knew Drew and his family when he lived in Spencer. I just wanted you to know I have been praying for Levi and your family.
Thank you Makila - your prayers mean so much to us. We greatly appreciate it. :)
Our son gage was diagnosed with acute lymphoblastic b cell leukemia on July 1st 2016. Reading your story and all your emotional Rollercoasters have helped me realize I am not alone. I have two critically ill children. One with down syndrome and esophageal atresia and gage who will be 3 on October 22nd 2016. I am so terrified. We have ran into so many complications.he's had 3 picc lines and one port and is getting another port this Monday. If you would be interested talking to me I would give you myour email. My name is kayla and we are from illinois.
Kayla, I apologize for the delay. I cannot imagine what you are going through. My heart breaks for you. Send me your email address so we can connect. In the meantime, we will be sending a lot of positive thoughts your way. Gage is a fighter like my Levi - they can do this...just hang in there.
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