Exhale..
Repeat...
Levi was supposed to begin Inter-maintenance II today - a new phase that gets us closer to Maintenance and closer to closing the door to Delayed Intensification. As it sometimes goes, Levi didn't make counts. His ANCs (ability to fight infection) were 410 and must be at least 700 to receive the next round of chemo. They are delaying us 10 days in hopes that gives Levi's body time to recover from the super intense chemo he received in this phase. They said this is common which I hope is true.
Sometimes it's hard to write. I have so much I want to say...but I am unsure if I want to share. So, I write. I delete. I re-write. I delete.
I just cannot believe this is happening to my Levi. Even now, 6 months into treatment...I wake up hoping it's a bad dream. He was completely healthy. We have nothing like this in our families. It came out of nowhere. And it's not going away anytime soon...
Levi is watching a movie in this picture...to many of you it's no big deal so why take a picture? For me, this is the night that I recognized that Levi will not be able to watch movies at night and eat popcorn for about 3 years. So from 4 until he's almost 7, his treatment will require him to take a chemo (6MP) that he has to take at night, on an empty stomach for at least 2-hours, and cannot eat for 3-hours after...so, basically no popcorn at night while watching movies. That makes me sad for him.
And here's Ellie - she's my heart....my beautiful baby is now a beautiful toddler.
I 
5 comments:
Thank you for sharing this. I know it's hard. We love you guys so much and our heart breaks that you are having these trials. I don't know why this happened, but I know our God loves Levi with his whole being and you too. You are strong enough, because He lives in you and will hold you up throughout all of this. Someday we will all look back and have a moment of gravity while we remember this time, but we will be grateful that the treatment worked and that Levi is healthy. Big hugs to you all!!
We love you guys Julie. You are in our prayers, and Levi is so strong! I am right down the street if you need me. ❤️
Hi - you don't know me but I went to school with Gretchen clear back in middle school. Through the wonders of social media reconnected with her just a few months before she started posting about Levi. I have committed to praying for him (and you) every day at 1:00pm. So, everyday when you see the time flip to 1, please know a stranger from Minnesota is praying.
Thank you all for your thoughts and prayers. It means so very much to me/us. It's not an easy journey but we are getting through it with your prayers so please keep them coming... xo!
Thinking about the four of you and praying daily, Julie. Sending so much love your way.
Robin
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